Welcome to Awareness against Thalassemia in Pakistan

The Thalassemia Awareness Pakistan is starving to improving the lives of individuals affected by thalassemia, a genetic blood disorder that is prevalent in our country. In particular, we focus on thalassemia major, also known as Cooley’s anemia, which results from the marriage of two carriers and is the most severe form of an inherited disease. Thalassemia is a serious health complication in Pakistan, with over 100,000 patients suffering from it, and an estimated 6,000 to 9,000 newborn babies annually with this condition called thalassemia major. Our mission is to raise awareness, facilitate affected individuals towards preventing further spread of this life-threatening disorder.

Our Mission

• Genetic Screening: Encouraging premarital screening / medical tests and genetic counseling to prevent thalassemia spread.
• Reducing Social misconception: Spreading knowledge to overcome the misconception attached to this genetic disorder.
• Awareness Campaigns: highlight the importance of timely detection and proper management of thalassemia.

Key Facts

• 6% of Pakistan’s population are carriers of the thalassemia minor (trait).
• Over 100,000 thalassemia patients in Pakistan require regular treatment which is very costly.
• 6,000 to 9,000 newborn babies are diagnosed with thalassemia major in Pakistan annually.

Raising Awareness & Education

We are committed to educate the medical fraternity, thalassemia carriers, and the general public about its hazard. Our efforts focus on:

• Normal Treatment: Thalassemia treatment mainly includes regular blood transfusions and iron chelation therapy.
• Advanced Treatment: We focus on advanced treatment options and seeking a cure for thalassemia major.

Result Benefits

• Enhancing Quality of Life: Through proper medical care and support, we work to improve the quality of life for patients.
• Advocating for Better Healthcare: Addressing limited access to healthcare and reducing the financial burden on families.

Together, we can work towards a thalassemia-free Pakistan by providing support, spreading knowledge, and advocating for better healthcare policies for those affected by this life-threatening disease.